Still Pregnant: My Miscarriage Was Misdiagnosed

"That is a seven-week-old embryo with a heartbeat," my doctor said.

"No, wait, is it human?" I asked, gasping for air, staring at the flickering heartbeat pulsing through the little body.

I couldn't believe it. Two weeks before, I'd been diagnosed with a miscarriage ——specifically, a chemical pregnancy. I'd raced to the doctor's office after experiencing heavy cramping and bleeding, and an ultrasound seemed to confirm my gut feeling that my pregnancy was ending. There wasn't an embryo where there should have been one. And yet, here I was, two weeks later, finding out that I was still pregnant.

I hesitated to share this news publicly, because I am wary of sowing false hope for other women: Most miscarriages really are miscarriages. But I wish I'd known, as I fully embraced the grieving process after my miscarriage diagnosis two weeks ago, that this was a possibility.

How often does this kind of reversal occur?

That's what I asked Charles Lockwood, MD, the chief of obstetrics and gynecology at Yale-New Haven Hospital.

"It's a pretty rare event," Dr. Lockwood tells me, "but we do see it happen. Sperm can remain active and viable in a woman's reproductive tract for up to six days," so conception can be much later than a woman (and her doctor) anticipated.

Dr. Lockwood sees this most often with IVF or other forms of assisted reproductive technology. "Even when we think we know with incredible precision when the date of conception is, we can be three or four days off. Delays in women's ovulation and/or an embryo's implantation can occur. I have seen twins that are both growing at a perfectly normal rate but one of them has been nearly a week off."

Now a big fan of second opinions, I also talked to Paul Blumenthal, MD, the director of family planning services and research at the Stanford University School of Medicine, to learn about his experience with what he calls "erroneous diagnoses of missed abortions."

Why did I bleed so much, I asked Dr. Blumenthal. "The fact of a pregnancy establishing a foothold in the uterus causes bleeding," he tells me. "And hormone levels fluctuate, leading the uterus to let go of some of its lining sometimes. Usually, in the case of bleeding, the pregnancy's continuation is tenuous. It's only possible to diagnose a missed abortion if you wait a few days after the bleeding," he says.

But what about that ultrasound I saw, the one that looked like a blighted ovum?

"This is a new conundrum people face," he says. "We don't want people to get upset by the [ultrasound] technology, because when we're looking at an early pregnancy, we can't be sure which side of the coin we're coming down on—: a pregnancy or a missed abortion. That's why we've got to wait a few days and test again." (And, I might add, it's probably a good idea not to break out the Johnny Walker until those second test results are in.)

In the future, it may be possible to measure hCG levels more precisely with at-home urine tests, says Dr. Blumenthal. So a woman who is not sure of her diagnosis might be able to test daily and watch if her levels are rising or falling.

I called up the the American College of Obstetricians and Gynecologists to see if they had any information on this phenomenon. But they could point me to no studies that count the number of times women ride this particularly crazy roller coaster of conception.

M for miracle

I've lived through the M-word, and I thought I knew everything there was to know about it. It turns out out I was wrong, as was my doctor. Now that M-word for me is miracle.

Will it continue to survive? Will this new baby stop our hearts once again with more drama? For me, every additional day I get with the little being is like a gift. I've already mourned its passing, so this is now a bonus baby as far as I'm concerned.

If you have a story about being misdiagnosed, email us at misdiagnosed@https://www.ishonest.com/

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